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Optimizing access to care for patients with idiopathic pulmonary fibrosis multi-stakeholder National Forum – Summary report and recommendations for policy-making
The Institute of Health Economics (IHE), in partnership with the Canadian Pulmonary Fibrosis Foundation (CPFF), held a forum on April 25th, 2016 in Toronto, Ontario, entitled Optimizing access to care for patients with idiopathic pulmonary fibrosis: A multi-stakeholder national forum, to discuss the need for patient-led policy recommendations and a patient charter for idiopathic pulmonary fibrosis (IPF), given recent developments in other countries. The forum participants also explored aspects of care that are most valuable to patients, and how these align with current policies. The forum was supported by an unrestricted grant from Boehringer Ingelheim (Canada) Ltd./Ltée.
The forum included about 30 participants, ranging from policymakers and health system administrators, experts in health technology assessment, patients, and care providers, who gathered to discuss previously drafted evidence-informed policy recommendations on IPF. These recommendations were developed by a smaller group of patients and caregivers in Fall 2015.
Please note that this document represents a summary reflection of issues raised by participants, and does not necessarily represent a consensus view of the participants or of the organizations involved.