Patient Reported Outcome Measurement
Patient Reported Outcome Measurement: Key People
National Institute for Health and Clinical Excellence (NICE) Experience with Using the EQ-5D in Economic Analysis
Dr. Stirling Bryan is a professor in UBC's School of Population & Public Health, and Director of the Centre for Clinical Epidemiology & Evaluation, Vancouver Coastal Health Research Institute.
Dr. Bryan is an economist with a career-long specialization in the economics of health care. His PhD (Economics) was obtained from Brunel University (UK), following a Masters (Health Economics) from the University of York (UK). For more than 20 years he has been a university-based practicing health economist with an extensive engagement to the policy and decision making world. The vast majority of his career has been spent in the UK, initially in London and subsequently in Birmingham. He has taught health economics to undergraduate economists and medical trainees, to postgraduate health economics students and to health sector professionals. His research track record reveals a longstanding goal of informing policy and practice. This is demonstrated, in part, through an extensive involvement with the UK National Institute for Health and Clinical Excellence (NICE).
For many years he led the University of Birmingham team that conducted economic analyses for NICE, and subsequently served for three years as a member of the NICE technology appraisals committee, advising on coverage policy. In 2005, he was awarded a Commonwealth Fund Harkness Fellowship and spent one year in the U.S., based at Stanford University, researching technology coverage decision making in U.S. health care organizations. His published papers reveal an ongoing research interest in coverage decision making processes. Since his relocation to Canada in 2008, he has continued a focus on policy-relevant research. His current position, sponsored by Vancouver Coastal Health, sees him working alongside policy colleagues in one of B.C.'s largest regional health authorities.
Nancy J. Devlin
NHS Experience with the EQ-5D as an Outcome Measure
Professor Nancy Devlin is Director of Research at the Office of Health Economics and honorary professor at the Centre of Health Economics, University of York, and at Cass Business School, London. She is the elected Chair of the EuroQol Group, the European-based international network of researcher which developed the EQ-5D, a widely used measure of patient reported outcomes.
Nancy has over 25 years of experience in health economics research. She has published over 70 original research papers in peer reviewed journals on a wide range of topics in health economics and is co-author of the UK's leading health economics textbook, Economic Analysis in Health Care. She has experience as a consultant and advisor to government and non-government health care organizations in the UK and internationally, including acting as an advisor to the English Department of Health on its PROMs program.
Nancy's principal areas of research expertise are the measurement and valuation of patient reported health outcomes; the cost effectiveness thresholds used in making judgements about value for money in health care; priority setting in health care; and the production, performance and efficiency of hospitals. She is currently principal investigator on several large-grant funded projects, including An EQ-5D-5L Value Set for England.
EQ-5D - Building Common Understanding Application of the EQ-5D in the Alberta's Caring for Diabetes (ABCD) Project
Dr. Jeff Johnson is a pharmacist and health services researcher. He is a Centennial Professor in the School of Public Health at the University of Alberta, and a Senior Health Scholar with Alberta Innovates Health Solutions. Dr. Johnson was recently appointed as Scientific Director for the Obesity, Diabetes and Nutrition Strategic Clinical Network for Alberta Health Services. He has held a number of national research awards, including a Canada Research Chair in Diabetes Health Outcomes and the 2008 Young Scientist with the Canadian Diabetes Association. Dr. Johnson leads the Alliance for Canadian Health Outcomes Research in Diabetes (ACHORD), a multi-disciplinary network of researchers with a common aim to improve the quality and efficiency of care for people living with diabetes.
Dr. Johnson has a long history of engagement with government and non-government agencies. As Co-Chair of the Scientific Working Group for the National Diabetes Surveillance System, he advised the Public Health Agency of Canada on the growth and development of chronic disease surveillance in Canada. He led the Alberta Diabetes Surveillance System for the past six years, in partnership with Alberta Health, and has been a member of Alberta Health's Expert Committee for Drugs and Therapeutics since 2005.
Dr. Johnson has taught graduate level courses in methods of assessing health-related quality of life for 15 years. He has been a member of the EuroQol Group since 1995, and has been involved in the creation of national value sets for the EQ-5D in the US and Canada. Since 2002, Dr. Johnson has served as a member of the Board of Management for the EuroQol Foundation, which is responsible for the allocation of funding to support the research activities of the EuroQol Group.
Understanding the Impact of Smoking and Obesity on Population Health in the United States
Dr. Erica Lubetkin is an associate medical professor in the Department of Community Health and Social Medicine at the Sophie Davis School of Biomedical Education of The City College of New York (City University of New York).
Dr. Lubetkin's research has focused on examining disparities in health outcomes. Specifically, she has examined health-related quality of life in inner-city community health centers and in the U.S. general adult population as well as quantifying the burden of disease due to selected sociodemographic and behavioral risk factors. Dr. Lubetkin is currently the co-principal investigator on three U54 funded projects with investigators from the Department of Psychiatry and Behavioral Sciences at Memorial Sloan-Kettering Cancer Center. Her work on those projects involves aspects related to primary and secondary cancer prevention, decision making, risk perception, and patient activation.
Dr. Lubetkin was graduated magna cum laude from Brown University and attended medical school at the Perelman School of Medicine at the University of Pennsylvania. She completed her internship and residency in internal medicine at New York Presbyterian Hospital - Weill Cornell Medical Center and pursued a general medicine fellowship at Columbia University College of Physicians and Surgeons where she earned a M.P.H. at the Mailman School of Public Health. Dr. Lubetkin is currently the course director for the second-year medical student class, Clinical Decision Making and Evidence-Based Medicine. She is a member of the EuroQol Group and is a core group member of the EuroQol Population Task Force.
Using the EQ-5D to Inform Choice of Dialysis Modality in Patients with Kidney Failure
Dr. Braden Manns is an Associate Professor and Nephrologist at the University of Calgary in the Departments of Medicine and Community Health Sciences and an Alberta Innovates - Health Solutions Health Scholar. He is chair of the Canadian Society of Nephrology Scientific Committee and principal investigator of a Canadian kidney disease "knowledge translation" network, CAnadian KidNey KNowledge TraNslation and GEneration NeTwork (CANN-NET).
Dr. Manns has expertise in Applied Health Economics and clinical research in Nephrology and is co-primary investigator for a larger inter-disciplinary team grant investigating chronic disease (www.icdc.ca/). His current interests include evaluation of international pharmaceutical reimbursement committees, examining the cost effectiveness of population-based chronic kidney disease (CKD) screening, and assessing the adequacy of care for Albertans with diabetes, among other projects. He has experience in pharmaceutical priority setting, having served on provincial and national committees for drug evaluation, including a term as Chair of Canadian Expert Drug Advisory Committee from 2006-2008. Dr. Manns teaches a graduate course in economics evaluation and supervises graduate students at all levels of training.
Incorporating the EQ-5D into Population Level Surveys in Alberta
Dr. Emmanuel Ngwakongnwi is a Health System Data Analyst at the Health Quality Council of Alberta (HQCA). In this role, he provides expertise to the HQCA's health system quality measurement initiatives including data collection processes, analytical methods, research design and reporting. He leads a network of Canadian partners assessing patient reported outcomes based on the EQ-5D in the Commonwealth Fund International Survey of Patients with Complex Health Needs. Additionally, he leads the HQCA's collaboration with the Institute of Health Economics IHE) on the use, analysis and reporting of the EQ-5D in the HQCA's Satisfaction and Experience with Health Care Services Survey of Albertans.
Dr. Ngwakongnwi obtained his PhD (Health Services Research) from the University of Calgary in 2012, following an MPH (Health Studies) from Lakehead University in 2007. Prior to joining the HQCA, he worked as Research Associate in the Department of Community Health Sciences, University of Calgary. Some of his published work examined the quality of documented preventative screening interventions in primary care, disparities in cervical cancer screening among visible minorities, and disparities in access to mental health services among children in Alberta. He was co-investigator in two CIHR funded research projects examining health services access utilization in official language minority communities.